Considering information practice and information experience through the lens of rare disease
Costes, Mylène
Considering information practice and information experience through the lens of rare disease - 2023.
90
This article investigates the process of information seeking about rare disease, by questioning the concepts of information practice and information experience. Our study shows the extent to which information seeking is inseparable from the trajectory of parents of children with developmental anomalies; such information seeking participates directly in parents’ information experience. Our research highlights the role of emotions in the information seeking process. Emotions condition parents’ information experience and influence the information practices of health professionals.
Considering information practice and information experience through the lens of rare disease - 2023.
90
This article investigates the process of information seeking about rare disease, by questioning the concepts of information practice and information experience. Our study shows the extent to which information seeking is inseparable from the trajectory of parents of children with developmental anomalies; such information seeking participates directly in parents’ information experience. Our research highlights the role of emotions in the information seeking process. Emotions condition parents’ information experience and influence the information practices of health professionals.
Réseaux sociaux