Elders as “experts”: Difficulties experienced by health care patients in having their experiential knowledge recognized
Terral, Philippe
Elders as “experts”: Difficulties experienced by health care patients in having their experiential knowledge recognized - 2022.
45
Focusing on a workshop that brought together caregivers and former patients to co-construct a tpe (Therapeutic Patient Education) program on the use of oral anti-cancer drugs (oac) associated with an interventional social science research project, this article studies how the expertise of former patients was mobilized. We show that not all former patient profiles are involved in this participatory device due to device selection processes or self-selection of the patients themselves. We then highlight the gap between these collaborative objectives and their concrete implementation, which is often more laborious. The analysis insists on the importance of some shared socio-cognitive skills required to persevere in the objective of co-construction. Ultimately, by considering the expertise of former patients, this investigation questions the links between epistemic inequalities and social inequalities, or, to put it differently, between knowledge and democracy.
Elders as “experts”: Difficulties experienced by health care patients in having their experiential knowledge recognized - 2022.
45
Focusing on a workshop that brought together caregivers and former patients to co-construct a tpe (Therapeutic Patient Education) program on the use of oral anti-cancer drugs (oac) associated with an interventional social science research project, this article studies how the expertise of former patients was mobilized. We show that not all former patient profiles are involved in this participatory device due to device selection processes or self-selection of the patients themselves. We then highlight the gap between these collaborative objectives and their concrete implementation, which is often more laborious. The analysis insists on the importance of some shared socio-cognitive skills required to persevere in the objective of co-construction. Ultimately, by considering the expertise of former patients, this investigation questions the links between epistemic inequalities and social inequalities, or, to put it differently, between knowledge and democracy.
Réseaux sociaux