Sickle Cell Disease from Adolescence to Adulthood
Guitton, Corinne
Sickle Cell Disease from Adolescence to Adulthood - 2014.
45
Coming to terms with a genetic chronic disease, like sickle cell disease (scd), involves the acceptance of an attack on the integrity of the body, the deprivation of freedom, additional dependence, and possible amputation of the future. This approach is quasi-paradoxical during adolescence when we think we are invulnerable. Management of daily life and preparation for the transition to adulthood become major issues. Indeed, an increased frequency of hospitalizations and deaths can be observed in the population of young scd adults, in the months following their transfer to the adult sector. This transition must be anticipated and addressed during early adolescence. Pediatric and adult teams must develop the terms of this passage in the light of local resources and should rely on therapeutic education programs for patients and their families if at all possible.
Sickle Cell Disease from Adolescence to Adulthood - 2014.
45
Coming to terms with a genetic chronic disease, like sickle cell disease (scd), involves the acceptance of an attack on the integrity of the body, the deprivation of freedom, additional dependence, and possible amputation of the future. This approach is quasi-paradoxical during adolescence when we think we are invulnerable. Management of daily life and preparation for the transition to adulthood become major issues. Indeed, an increased frequency of hospitalizations and deaths can be observed in the population of young scd adults, in the months following their transfer to the adult sector. This transition must be anticipated and addressed during early adolescence. Pediatric and adult teams must develop the terms of this passage in the light of local resources and should rely on therapeutic education programs for patients and their families if at all possible.
Réseaux sociaux