The project of a person with amyotrophic lateral sclerosis in the advanced palliative phase

Gallois, Marion

The project of a person with amyotrophic lateral sclerosis in the advanced palliative phase - 2019.


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This study presents the case of a patient with bulbar amyotrophic lateral sclerosis in the symptomatic palliative phase. The patient wanted to attend a sporting tribute event organized in his honor in ten days’ time. During his hospitalization, the patient experienced acute respiratory distress due to pneumonia, meaning that decisions had to be made about his care. Therapeutic interventions were adapted to make it possible for the patient to attend the event despite him being close to the end of his life. He died two days after the tribute. This clinical case illustrates interdisciplinarity within teams, and discusses the synergistic intertwining of technique and relationship.

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