Patients’ rights and the end of life in France: Where do we stand in 2024?

Bretonnière, Sandrine

Patients’ rights and the end of life in France: Where do we stand in 2024? - 2024.


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The scope of patients’ rights has been expanding since the mid-twentieth century. Their founding principle is the individual’s consent to medical research, treatment, and care. Part of the movement for patients’ rights, access to medical aid in dying is a long-standing concern of citizens. This article presents a historical and sociological perspective allowing us to trace the genealogy of patients’ rights in the second half of the twentieth century. It analyzes the emergence and consolidation of the political and citizen engagement toward new patients’ rights in medical aid in dying, most notably illustrated by the Citizens’ Convention on End of Life in 2022–2023. Further, I aim to demonstrate that a rebalancing of the doctor-patient relationship is underway, based on an assertive patient autonomy. This dynamic is strengthened by an emphasis on consent and patients’ rights.

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