Néonatologistes d’Île-de-France face à des parents opposés à une limitation ou arrêt des thérapeutiques (LAT) : vécu, ressentis et propositions (notice n° 1028824)
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| fixed length control field | 03406cam a2200325 4500500 |
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| control field | 20250125171925.0 |
| 041 ## - LANGUAGE CODE | |
| Language code of text/sound track or separate title | fre |
| 042 ## - AUTHENTICATION CODE | |
| Authentication code | dc |
| 100 10 - MAIN ENTRY--PERSONAL NAME | |
| Personal name | Razafimahefa, Hasinirina |
| Relator term | author |
| 245 00 - TITLE STATEMENT | |
| Title | Néonatologistes d’Île-de-France face à des parents opposés à une limitation ou arrêt des thérapeutiques (LAT) : vécu, ressentis et propositions |
| 260 ## - PUBLICATION, DISTRIBUTION, ETC. | |
| Date of publication, distribution, etc. | 2018.<br/> |
| 500 ## - GENERAL NOTE | |
| General note | 14 |
| 520 ## - SUMMARY, ETC. | |
| Summary, etc. | Objectifs : Évaluer les impacts de refus parentaux de limitation ou arrêt des thérapeutiques (LAT) chez le nouveau-né en Île-de-France, leur fréquence, les pratiques. Méthodologie : Questionnaires envoyés aux 15 centres de type 3 franciliens sur les pratiques de 2016 à 2018. Résultats : Quatorze ont répondu et ont rencontré un à trois refus par an par centre. Les causes les plus fréquentes étaient la volonté de respecter la vie quel que soit le handicap pronostiqué, les causes religieuses, le manque de confiance des parents dans l’équipe médicale. Deux tiers des réponses des médecins évoquaient la survenue d’une détresse morale ; pourtant, près de 70 % avaient une capacité de résilience. Des difficultés d’interprétation de la loi étaient souvent évoquées. La proposition-phare d’amélioration des pratiques était d’apporter un soutien systématique aux parents. Conclusion : Cette étude est la première à évaluer les refus de LAT en médecine néonatale depuis la loi Claeys-Leonetti et pourrait être un préliminaire à l’organisation d’un observatoire régional. |
| 520 ## - SUMMARY, ETC. | |
| Summary, etc. | Objectives: To estimate the impacts of parental refusals of withdrawing or withholding of treatment in critically ill newborn babies in the region of Paris (Île-de-France), their frequency, the practices. Methodology: Questionnaires were sent to the 15 level-3 centres of the Île-de-France region practices from 2016 to 2018. Results: Fourteen centres answered; they meet 1 to 3 refusals/year/centre. The most frequent causes of refusal were the will to respect life whatever the estimated handicap in the child, the religious causes, the lack of confidence of the parents in the medical team. Two-thirds of the answers of the doctors evoked the arisen of a moral distress; nevertheless about 70 % had a capacity of resilience. Difficulties with understanding the law were often evoked. The main proposal of improvement of the practices was to bring a systematic support to the parents. Conclusion: This study is the first one to estimate the refusals of withdrawing or withholding of treatment in critically ill newborn babies in France since the 2016 law, and could be a preliminary to the organization of a regional monitoring centre. |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | Limitation ou arrêt de traitement |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | Refus |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | Médecins |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | Détresse morale |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | Parents |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | Moral<br/>distress |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | Refusals of withdrawing or withholding<br/>treatment |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | France |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | Critically ill newborn babies |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | Doctors |
| 700 10 - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Kotti, Ahmed |
| Relator term | author |
| 700 10 - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Laborne, François-Xavier |
| Relator term | author |
| 700 10 - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Granier, Michèle |
| Relator term | author |
| 786 0# - DATA SOURCE ENTRY | |
| Note | Revue de Médecine Périnatale | 10 | 3 | 2018-09-16 | p. 160-166 | 2678-6524 |
| 856 41 - ELECTRONIC LOCATION AND ACCESS | |
| Uniform Resource Identifier | <a href="https://shs.cairn.info/revue-de-medecine-perinatale-2018-3-page-160?lang=fr&redirect-ssocas=7080">https://shs.cairn.info/revue-de-medecine-perinatale-2018-3-page-160?lang=fr&redirect-ssocas=7080</a> |
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