Consent in the making: (dis)agreements between children and health staff and micro-consent in the field of pediatric cardiology (notice n° 1056914)

détails MARC
000 -LEADER
fixed length control field 02350cam a2200277 4500500
005 - DATE AND TIME OF LATEST TRANSACTION
control field 20250130140436.0
041 ## - LANGUAGE CODE
Language code of text/sound track or separate title fre
042 ## - AUTHENTICATION CODE
Authentication code dc
100 10 - MAIN ENTRY--PERSONAL NAME
Personal name Vaucher, Carla
Relator term author
245 00 - TITLE STATEMENT
Title Consent in the making: (dis)agreements between children and health staff and micro-consent in the field of pediatric cardiology
260 ## - PUBLICATION, DISTRIBUTION, ETC.
Date of publication, distribution, etc. 2022.<br/>
500 ## - GENERAL NOTE
General note 28
520 ## - SUMMARY, ETC.
Summary, etc. In the context of the medical and hospital care of children, consent raises ethical issues and practical difficulties, related to legal ambiguities, to current representations of children in our societies, to tensions between individual and clinical rhythms, or to the resistances displayed by children during daily care gestures. As part of a research focused on the experience of Beninese and Togolese children suffering from congenital heart defects and cared for by a humanitarian medicine program in Switzerland, this article aims to highlight the silent, discreet, gradual and collective forms of consent that often go unnoticed in discourses and ethical debates surrounding the concept of consent. Based on ethnographic observations in various general pediatric departments and pediatric cardiology units, the article explores how health staff and children negotiate and agree on the modalities of carrying out examinations and care. By paying attention to consent in the making, this article proposes an alternative conception of consent which integrates material and human mediations as well as the notion of micro-consent, resulting in a sequence of discreet and gradual agreements involving verbal, bodily, material, and temporal registers in routine situations. The data documents the important positioning, bodily, emotional and mediation work that is carried out by children and health staff in uncommon care situations due to the absence of a parental third party.
690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN)
Topical term or geographic name as entry element ethnography
690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN)
Topical term or geographic name as entry element pediatric cardiology
690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN)
Topical term or geographic name as entry element children
690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN)
Topical term or geographic name as entry element consent
690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN)
Topical term or geographic name as entry element micro-consent
690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN)
Topical term or geographic name as entry element ethnography
690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN)
Topical term or geographic name as entry element pediatric cardiology
690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN)
Topical term or geographic name as entry element children
690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN)
Topical term or geographic name as entry element consent
690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN)
Topical term or geographic name as entry element micro-consent
786 0# - DATA SOURCE ENTRY
Note Sciences sociales et santé | 40 | 2 | 2022-06-01 | p. 37-60 | 0294-0337
856 41 - ELECTRONIC LOCATION AND ACCESS
Uniform Resource Identifier <a href="https://shs.cairn.info/journal-sciences-sociales-et-sante-2022-2-page-37?lang=en&redirect-ssocas=7080">https://shs.cairn.info/journal-sciences-sociales-et-sante-2022-2-page-37?lang=en&redirect-ssocas=7080</a>

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