Enquête de besoins en éducation thérapeutique de parents d’enfants ayant un diabète : opinions croisées (notice n° 250099)
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| 000 -LEADER | |
|---|---|
| fixed length control field | 03943cam a2200325 4500500 |
| 005 - DATE AND TIME OF LATEST TRANSACTION | |
| control field | 20250112071432.0 |
| 041 ## - LANGUAGE CODE | |
| Language code of text/sound track or separate title | fre |
| 042 ## - AUTHENTICATION CODE | |
| Authentication code | dc |
| 100 10 - MAIN ENTRY--PERSONAL NAME | |
| Personal name | Fernique, Elsa |
| Relator term | author |
| 245 00 - TITLE STATEMENT | |
| Title | Enquête de besoins en éducation thérapeutique de parents d’enfants ayant un diabète : opinions croisées |
| 260 ## - PUBLICATION, DISTRIBUTION, ETC. | |
| Date of publication, distribution, etc. | 2022.<br/> |
| 500 ## - GENERAL NOTE | |
| General note | 20 |
| 520 ## - SUMMARY, ETC. | |
| Summary, etc. | Introduction: Therapeutic education is a central element of the management of type 1 diabetes in children. Aim: The aim of this study was to identify the therapeutic education needs of their parents by considering the views and experiences of parents and professional carers. Methods: Four focus groups of parents and 6 focus groups of professional carers explored the difficulties parents face in relation to their child’s diabetes, and the most effective support for them. Results: Parents face difficulties in the daily medical care, in the relationship to their child in the family, in the relationship to others (school, family, friends, carers) until repercussion on their psychological well-being. Carers analyse differently some difficulties and underestimate how hard it is for parents to see their child undergoing unpleasant medical treatment as well as the other people’s ignorance and fears. Participants identified therapeutic education and peer exchange as appropriate responses to these challenges. Putting these suggestions into practice in a therapeutic education setting would provide an opportunity for carers to learn more about the daily lives of families and adapt their medical practice. Conclusion: Crossing the points of view has led to the development of a parental skills matrix which could prove to be a useful therapeutic education tool. |
| 520 ## - SUMMARY, ETC. | |
| Summary, etc. | Introduction : L’éducation thérapeutique est l’un des axes de l’accompagnement médical des enfants ayant un diabète de type 1. But : L’objectif de ce travail est d’appréhender les besoins en éducation thérapeutique de leurs parents en confrontant les points de vue de parents et de soignants. Méthodes : Quatre entretiens en focus group de parents et six de soignants ont permis d’interroger les difficultés des parents liées au diabète de leur enfant, et les aides perçues comme efficaces. Résultats : Les parents rencontrent des difficultés dans leur rôle de soignant au quotidien, dans la relation parent-enfant au sein de la famille, dans leur relation aux autres (école, famille, amis, soignants) jusqu’à des répercussions sur leur bien-être psychologique. Les soignants analysent différemment certaines difficultés et sous-estiment la souffrance de voir son enfant subir des soins pénibles, ainsi que l’ignorance et les peurs des autres personnes. L’éducation thérapeutique et l’échange entre pairs sont perçus comme une réponse pertinente à ces difficultés. Leur réalisation dans des séjours médico-éducatifs est l’occasion pour les soignants de mieux connaître le quotidien des parents et d’orienter leur pratique. Conclusion : Le croisement des points de vue a permis la réalisation d’un schéma des aptitudes parentales qui nous semble un outil intéressant en éducation thérapeutique. |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | diabète de type 1 |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | séjour médico-éducatif |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | échange entre pairs |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | besoins éducatifs des parents |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | compétences parentales |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | parents educationnal needs |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | peer exchange |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | diabetes mellitus |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | parent’s skills |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | herapeutic education camp |
| 700 10 - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Choleau, Carine |
| Relator term | author |
| 700 10 - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Girard, Pauline |
| Relator term | author |
| 700 10 - ADDED ENTRY--PERSONAL NAME | |
| Personal name | de Kerdanet, Marc |
| Relator term | author |
| 786 0# - DATA SOURCE ENTRY | |
| Note | Éducation thérapeutique du patient / Therapeutic patient education | 14 | 1 | 2022-01-01 | p. 1-16 | 2100-0808 |
| 856 41 - ELECTRONIC LOCATION AND ACCESS | |
| Uniform Resource Identifier | <a href="https://shs.cairn.info/revue-education-therapeutique-du-patient-2022-1-page-1?lang=fr">https://shs.cairn.info/revue-education-therapeutique-du-patient-2022-1-page-1?lang=fr</a> |
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