Self-management of pain crisis in patients with sickle cell disease (notice n° 578716)
[ vue normale ]
| 000 -LEADER | |
|---|---|
| fixed length control field | 03471cam a2200301 4500500 |
| 005 - DATE AND TIME OF LATEST TRANSACTION | |
| control field | 20250121135542.0 |
| 041 ## - LANGUAGE CODE | |
| Language code of text/sound track or separate title | fre |
| 042 ## - AUTHENTICATION CODE | |
| Authentication code | dc |
| 100 10 - MAIN ENTRY--PERSONAL NAME | |
| Personal name | Bargain, Diane |
| Relator term | author |
| 245 00 - TITLE STATEMENT | |
| Title | Self-management of pain crisis in patients with sickle cell disease |
| 260 ## - PUBLICATION, DISTRIBUTION, ETC. | |
| Date of publication, distribution, etc. | 2022.<br/> |
| 500 ## - GENERAL NOTE | |
| General note | 32 |
| 520 ## - SUMMARY, ETC. | |
| Summary, etc. | Introduction : la drépanocytose, la première maladie génétique en France et dans le monde, est pourtant méconnue des soignants et du grand public.Contexte : peu d’études portent sur le quotidien des adultes atteints de drépanocytose.Objectif : cette recherche vise à décrire la gestion des crises vaso-occlusives et des symptômes associés par les personnes âgées de plus de trente ans.Méthode : une étude qualitative pilote a été menée auprès de huit personnes homozygotes SS vivant en Ile-de-France. Les entretiens semi-directifs conduits au domicile des patients ont fait l’objet d’une analyse thématique.Résultats : la douleur et la souffrance sont les principales plaintes des patients, contre lesquelles ils développent un ensemble de stratégies comme des mesures préventives, des moyens médicamenteux et non médicamenteux.Discussion : l’approche inductive a mis en lumière le travail quotidien qu’effectuent les patients pour la gestion des symptômes.Conclusion : cette recherche suggère de nouvelles pistes de réflexion pour la pratique, comme l’accompagnement dans l’amélioration du sentiment de contrôle de la maladie et une activité physique adaptée. |
| 520 ## - SUMMARY, ETC. | |
| Summary, etc. | Introduction: Sickle cell disease, while it is the most common genetic disease in France, is little-known to caregivers and the general public.Context: Only a few studies have examined the daily lives of people suffering from this disease.Objectives: The purpose of this project was to describe the specific strategies helping adult patients to manage the symptoms of their disease.Method: To reach this objective, a qualitative study was conducted among eight homozygous (SS) people over 30 years old living in the Ile-de-France region of France. The semi-structured interviews took place at the patients’ homes. Patients were selected from several treatment centers and on social media. An inductive methodology and a thematic analysis were used to draw the conclusions of this research.Results: The results show that pain and suffering are patients’ main complaints. Patients suffering from sickle cell disease seek numerous effective self-care strategies to manage their long-term pain: preventive measures and drugs, as well as complementary and alternative medicine.Discussion: A sociological approach shows us the considerable work that patients undertake to manage symptoms daily.Conclusion: The findings support interventions that would increase patients’ feeling of control over the disease through better self-awareness and appropriate physical activity. |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | sickle cell disease |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | self-management |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | adults |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | pain |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | qualitative research |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | sickle cell disease |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | self-management |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | adults |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | pain |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | qualitative research |
| 700 10 - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Teixeira, Maria |
| Relator term | author |
| 786 0# - DATA SOURCE ENTRY | |
| Note | Recherche en soins infirmiers | o 147 | 4 | 2022-02-10 | p. 82-91 | 0297-2964 |
| 856 41 - ELECTRONIC LOCATION AND ACCESS | |
| Uniform Resource Identifier | <a href="https://shs.cairn.info/journal-recherche-en-soins-infirmiers-2021-4-page-82?lang=en&redirect-ssocas=7080">https://shs.cairn.info/journal-recherche-en-soins-infirmiers-2021-4-page-82?lang=en&redirect-ssocas=7080</a> |
Pas d'exemplaire disponible.
Réseaux sociaux