Knowledge gaps for functional outcomes after multilobar resective and disconnective pediatric epilepsy surgery: Conference Proceedings of the Patient-Centered Stakeholder Meeting 2019 (notice n° 612118)
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| fixed length control field | 03302cam a2200433 4500500 |
| 005 - DATE AND TIME OF LATEST TRANSACTION | |
| control field | 20250121162734.0 |
| 041 ## - LANGUAGE CODE | |
| Language code of text/sound track or separate title | fre |
| 042 ## - AUTHENTICATION CODE | |
| Authentication code | dc |
| 100 10 - MAIN ENTRY--PERSONAL NAME | |
| Personal name | Jones, Monika |
| Relator term | author |
| 245 00 - TITLE STATEMENT | |
| Title | Knowledge gaps for functional outcomes after multilobar resective and disconnective pediatric epilepsy surgery: Conference Proceedings of the Patient-Centered Stakeholder Meeting 2019 |
| 260 ## - PUBLICATION, DISTRIBUTION, ETC. | |
| Date of publication, distribution, etc. | 2022.<br/> |
| 500 ## - GENERAL NOTE | |
| General note | 11 |
| 520 ## - SUMMARY, ETC. | |
| Summary, etc. | For children with medication-resistant epilepsy who undergo multilobar or hemispheric surgery, the goal of achieving seizure freedom is met with a variety of potential functional consequences, both favorable and unfavorable. However, there is a paucity of literature that comprehensively addresses the cognitive, medical, behavioral, orthopedic, and sensory outcomes across the lifespan following large epilepsy surgeries in childhood, leaving all stakeholders underinformed with regard to counseling and expectations. Through collaboration between clinicians, researchers, and patient/caregiver stakeholders, the “Functional Impacts of Large Resective or Disconnective Pediatric Epilepsy Surgery: Identifying Gaps and Setting PCOR Priorities” meeting was convened on July 18, 2019, to identify gaps in knowledge and inform various patient-centered research initiatives. Clinicians and researchers with content expertise presented the best available data in each functional domain which is summarized here. As a result of the meeting, the top three consensus priorities included research focused on postoperative: (1) hydrocephalus; (2) mental health issues; and (3) literacy and other educational outcomes. The proceedings of this meeting mark the first time research on functional outcomes after resective and disconnective pediatric epilepsy surgery has been codified and shared among multidisciplinary stakeholders. This joint initiative promotes continued collaboration in the field and ensures that advancements align with actual patient and family needs and experiences. Collaboration around common objectives will lead to better informed counseling around postoperative expectations and management for children undergoing epilepsy surgery. |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | multi-lobar epilepsy surgery |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | hemispherectomy |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | functional outcome |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | hemispherotomy |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | pediatric epilepsy |
| 700 10 - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Harris, William B. |
| Relator term | author |
| 700 10 - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Perry, M. Scott |
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| 700 10 - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Behrmann, Marlene |
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| 700 10 - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Christodoulou, Joanna |
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| 700 10 - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Fallah, Aria |
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| 700 10 - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Kolb, Bryan |
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| 700 10 - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Musiek, Frank |
| Relator term | author |
| 700 10 - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Paul, Lynn K. |
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| 700 10 - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Puka, Klajdi |
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| 700 10 - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Salorio, Cynthia |
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| 700 10 - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Sankar, Raman |
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| 700 10 - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Smith, Mary Lou |
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| 700 10 - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Naduvil Valappil, Ahsan Moosa |
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| 700 10 - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Walshaw, Patricia |
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| 700 10 - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Weiner, Howard L. |
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| 700 10 - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Woo, Raymond |
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| 700 10 - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Zeitler, Phillip |
| Relator term | author |
| 700 10 - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Abel, Taylor J. |
| Relator term | author |
| 786 0# - DATA SOURCE ENTRY | |
| Note | Epileptic Disorders | Vol 24 | 1 | 2022-01-01 | p. 50-66 | 1294-9361 |
| 856 41 - ELECTRONIC LOCATION AND ACCESS | |
| Uniform Resource Identifier | <a href="https://shs.cairn.info/revue-epileptic-disorders-2022-1-page-50?lang=en&redirect-ssocas=7080">https://shs.cairn.info/revue-epileptic-disorders-2022-1-page-50?lang=en&redirect-ssocas=7080</a> |
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