Electronic seizure diaries for clinical care and research (notice n° 612213)
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| 000 -LEADER | |
|---|---|
| fixed length control field | 02359cam a2200241 4500500 |
| 005 - DATE AND TIME OF LATEST TRANSACTION | |
| control field | 20250121162750.0 |
| 041 ## - LANGUAGE CODE | |
| Language code of text/sound track or separate title | fre |
| 042 ## - AUTHENTICATION CODE | |
| Authentication code | dc |
| 100 10 - MAIN ENTRY--PERSONAL NAME | |
| Personal name | Gray, Tyler E. |
| Relator term | author |
| 245 00 - TITLE STATEMENT | |
| Title | Electronic seizure diaries for clinical care and research |
| 260 ## - PUBLICATION, DISTRIBUTION, ETC. | |
| Date of publication, distribution, etc. | 2022.<br/> |
| 500 ## - GENERAL NOTE | |
| General note | 1 |
| 520 ## - SUMMARY, ETC. | |
| Summary, etc. | Objective People with epilepsy often record their seizures in diaries. While seizure diaries can be kept using paper and digital notes or calendars, electronic seizure diary services are available on web browsers and mobile apps. Benefits of these electronic diaries include standardized data collection, data backup and protection, long-term trending, and data accessibility to providers or research groups. The major electronic seizure diary services have not recently been systematically evaluated or compared. Methods We evaluated nine electronic seizure diaries selected based on popularity and prevalence in the literature. Diaries were tested from both the user and provider perspectives. Results A review of nine commonly used seizure diary services that we could identify showed variability in features offered. All services provide a seizure log with inputs for date and seizure type along with a combination of other features such as duration, intensity, trigger, recovery, mood, and description. Other notable features included in some, but not all diary services are: the ability to track medications, missed doses, sleep, menstrual cycles, and other possible triggers; provider accounts to share data; the ability to report clusters and seizure severity;an option for medication reminders;user-friendly trending of long-term data in relation to changes in treatment;and the ability to export data for research. Significance Having electronic diaries that allow patients to log seizures quickly and accurately can improve the quantity and quality of data, which can be used both for clinical and research benefit. |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | diaries |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | mobile apps |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | seizures |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | epilepsy |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | patient-reported outcomes |
| 700 10 - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Hirsch, Lawrence J. |
| Relator term | author |
| 700 10 - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Quraishi, Imran H. |
| Relator term | author |
| 786 0# - DATA SOURCE ENTRY | |
| Note | Epileptic Disorders | Vol 24 | 5 | 2022-05-01 | p. 803-811 | 1294-9361 |
| 856 41 - ELECTRONIC LOCATION AND ACCESS | |
| Uniform Resource Identifier | <a href="https://shs.cairn.info/revue-epileptic-disorders-2022-5-page-803?lang=en&redirect-ssocas=7080">https://shs.cairn.info/revue-epileptic-disorders-2022-5-page-803?lang=en&redirect-ssocas=7080</a> |
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