Maladie d'Alzheimer et maladies apparentées, des représentations sociales contrastées : évolution des regards dans la culture et les médias (2010-2018) (notice n° 647312)
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| 005 - DATE AND TIME OF LATEST TRANSACTION | |
| control field | 20250121183520.0 |
| 041 ## - LANGUAGE CODE | |
| Language code of text/sound track or separate title | fre |
| 042 ## - AUTHENTICATION CODE | |
| Authentication code | dc |
| 100 10 - MAIN ENTRY--PERSONAL NAME | |
| Personal name | Ngatcha-Ribert, Laëtitia |
| Relator term | author |
| 245 00 - TITLE STATEMENT | |
| Title | Maladie d'Alzheimer et maladies apparentées, des représentations sociales contrastées : évolution des regards dans la culture et les médias (2010-2018) |
| 260 ## - PUBLICATION, DISTRIBUTION, ETC. | |
| Date of publication, distribution, etc. | 2019.<br/> |
| 500 ## - GENERAL NOTE | |
| General note | 12 |
| 520 ## - SUMMARY, ETC. | |
| Summary, etc. | La maladie d'Alzheimer est devenue un véritable « bruit de fond » dans la société, se banalisant au quotidien dans les médias et les œuvres de fiction. Cet article synthétise les résultats d'une revue de la littérature réalisée par la Fondation Médéric Alzheimer. Les représentations de la maladie nous semblent n'avoir jamais été aussi « complexes et sophistiquées » qu'aujourd'hui : plus grande prudence des médias face aux incertitudes médicales et scientifiques, prise en compte des spécificités de certains groupes de personnes malades, importance des enjeux de communication (Que montrer ? Que et comment communiquer sans misérabilisme ni angélisme ?) semblent des tendances majeures. Les représentations des personnes atteintes de la maladie d'Alzheimer (entre incarnation de l'héroïsme et figure de l'indésirable) semblent fortement contrastées, à l'image des représentations des aidants (entre sacrifice et maltraitance). Les changements de regard continueront à se poursuivre grâce à la parole et à l'action des personnes malades elles-mêmes, qui revendiquent être « experts » de leur maladie, voire « activistes » de la cause, au sein de sociétés que certains appellent aujourd'hui à être dementia friendly, c'est-à-dire accueillantes pour les personnes atteintes de démence. |
| 520 ## - SUMMARY, ETC. | |
| Summary, etc. | Through a national and international press review (about 60 pages monthly, and 2 000 sources), the Foundation Médéric Alzheimer (FMA) found that Alzheimer's disease continues to supply an abundant media and cultural production. Therefore FMA wished to understand how the social perceptions on Alzheimer's disease, subjects with Alzheimer's disease and their caregivers, have evolved since 2010. We reviewed printed press, documentaries, and awareness campaigns. Cultural productions included fiction materials such as novels, theatre plays, films, television series etc. We estimated at about one hundred and fifty the number of articles that were analyzed. Observed trends show that Alzheimer's disease has been trivialized, becoming a “background noise” both in media (coverage of research advances, local stories) and fiction works (in particular by singers and comedians, development of child literature etc.). Meanwhile, the disease is represented in a more sophisticated way, for instance addressing the specific needs of certain groups (young persons with dementia, person with sensory deficits, or cultural groups…). Alzheimer's associations are notably faced to critical issues (What to show? What and how to communicate?), without pessimism or overly naïve optimism. Representations of people with Alzheimer's disease are highly contrasted, between incarnation of heroism and figure of undesirable, as representations of caregivers (between sacrifice and abuse). Changes in Alzheimer disease representation will continue, thanks to the advocacy of persons with dementia themselves, activists and founders of groups and associations, in a society that some people appeal to become more dementia-friendly. |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | médias |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | représentations sociales |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | activisme |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | regard |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | démence |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | maladie d'Alzheimer |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | social perception |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | activism |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | Alzheimer's disease |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | dementia |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | mass media |
| 786 0# - DATA SOURCE ENTRY | |
| Note | Gériatrie et Psychologie Neuropsychiatrie du Vieillissement | 17 | 4 | 2019-12-02 | p. 405-414 | 2115-8789 |
| 856 41 - ELECTRONIC LOCATION AND ACCESS | |
| Uniform Resource Identifier | <a href="https://shs.cairn.info/revue-geriatrie-et-psychologie-neuropsychiatrie-du-vieillissement-2019-4-page-405?lang=fr&redirect-ssocas=7080">https://shs.cairn.info/revue-geriatrie-et-psychologie-neuropsychiatrie-du-vieillissement-2019-4-page-405?lang=fr&redirect-ssocas=7080</a> |
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