Vécu des familles d’enfants autistes de 1960 à 2005 : une étude rétrospective (notice n° 796871)
[ vue normale ]
| 000 -LEADER | |
|---|---|
| fixed length control field | 04079cam a2200301 4500500 |
| 005 - DATE AND TIME OF LATEST TRANSACTION | |
| control field | 20250123121001.0 |
| 041 ## - LANGUAGE CODE | |
| Language code of text/sound track or separate title | fre |
| 042 ## - AUTHENTICATION CODE | |
| Authentication code | dc |
| 100 10 - MAIN ENTRY--PERSONAL NAME | |
| Personal name | Chamak, Brigitte |
| Relator term | author |
| 245 00 - TITLE STATEMENT | |
| Title | Vécu des familles d’enfants autistes de 1960 à 2005 : une étude rétrospective |
| 260 ## - PUBLICATION, DISTRIBUTION, ETC. | |
| Date of publication, distribution, etc. | 2017.<br/> |
| 500 ## - GENERAL NOTE | |
| General note | 31 |
| 520 ## - SUMMARY, ETC. | |
| Summary, etc. | Afin d’analyser les difficultés rencontrées par les parents d’enfants autistes, nous avons entrepris en 2005 une étude sociologique rétrospective visant à comparer l’expérience des parents des années 1960-1990 et 1990-2005. Un questionnaire, élaboré pour rendre compte du vécu des parents, a été largement distribué : 248 questionnaires ont été obtenus pour une population de 200 personnes autistes de 4 à 45 ans et des entretiens approfondis ont été menés avec 36 mères et 6 pères. Les résultats montrent que les diagnostics d’autisme sont obtenus de façon plus précoce : 10 ± 8 ans de 1960 à 1990, 5 ± 3 ans de 1990 à 2005. Le pourcentage de parents mécontents est passé de 93% à 63%. Le processus diagnostique a suscité le mécontentement des parents à cause du délai d’obtention du diagnostic, des termes utilisés ou de l’annonce brutale sans précaution ni considération. Pour la prise en charge, la satisfaction des parents est de 62% pour les adultes et de 47% pour les enfants. Les parents sont satisfaits lorsqu’ils ont enfin trouvé une structure adaptée au fonctionnement de leur enfant adulte. Pour les parents d’enfants jeunes, les insatisfactions sont nombreuses : manque de places en structures médico-sociales, temps scolaire insuffisant, prise en charge trop morcelée, demandes de méthodes cognitivo-comportementales intensives non satisfaites. La pénurie de places, les inégalités territoriales et les indices psycho-socio-économiques défavorables laissent de nombreuses familles dans le désarroi. |
| 520 ## - SUMMARY, ETC. | |
| Summary, etc. | The experiences of parents with autistic children from 1960 to 2005: a retrospective StudyIn order to analyse the difficulties encountered by the parents of autistic children, in 2005 we undertook a retrospective study aiming to compare the experiences of the families for the period from 1960 to 1990 with the period from 1990 to 2005. A questionnaire specially designed to capture the experiences of these parents was widely circulated – 248 questionnaires were returned for a population of 200 autistic people aged 4 to 45 at the time of the survey. In-depth interviews were conducted with 36 mothers and 6 fathers. The results show that the diagnoses of autism are obtained earlier today – at the age of 10 ± 8 years from 1960 to 1990 and at the age of 5 ± 3 years between 1990 and 2005. Alongside, the percentage of parental discontent fell from 93% to 63%. The diagnostic process caused dissatisfaction among parents because of long delay in obtaining it and/or blunt announcement without care or consideration. For care provision, parental satisfaction was 62% for the care of autistic individuals who were adults at the time of the survey, and 47% for the children. The parents were satisfied when they finally found appropriate solution for their adult children. For the young children, there were many reasons for dissatisfaction: lack of educational and care services, not enough school hours, fragmented services, requests of intensive behavioral methods unmet. The shortage of places in facilities, territorial inequalities and unfavorable psycho-socio-economic indicators leave many families in situations of distress. |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | diagnostic |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | vécu des parents |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | pénurie |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | autisme |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | interventions |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | autism |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | parents’ experiences |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | diagnosis |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | distress |
| 690 ## - LOCAL SUBJECT ADDED ENTRY--TOPICAL TERM (OCLC, RLIN) | |
| Topical term or geographic name as entry element | interventions |
| 700 10 - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Bonniau, Béatrice |
| Relator term | author |
| 786 0# - DATA SOURCE ENTRY | |
| Note | Perspectives Psy | 56 | 1 | 2017-04-18 | p. 19-28 | 0031-6032 |
| 856 41 - ELECTRONIC LOCATION AND ACCESS | |
| Uniform Resource Identifier | <a href="https://shs.cairn.info/revue-perspectives-psy-2017-1-page-19?lang=fr&redirect-ssocas=7080">https://shs.cairn.info/revue-perspectives-psy-2017-1-page-19?lang=fr&redirect-ssocas=7080</a> |
Pas d'exemplaire disponible.
Réseaux sociaux