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REIN: A tool for pediatric patients

Par : Contributeur(s) : Type de matériel : TexteTexteLangue : français Détails de publication : 2022. Ressources en ligne : Abrégé : To mark twenty years of the REIN (French Renal Epidemiology and Information Network), a summary report on the contributions of the French national end-stage kidney disease (ESKD) registry was produced. On pediatric patients, a number of key takeaways were identified. Pediatric ESKD has particularities that must be analyzed and taken into account, since the mortality of these patients remains 30 times higher than that of children of the same age. The REIN registry illustrates the specificities of ESKD in the pediatric age-group in France and provides a set of indicators making it possible to describe the outcomes for these patients and decisions made concerning the modalities of renal replacement therapy. Compared to other European countries, the incidence and prevalence of ESKD in France is in the middle range for children under 15 and 20 years old. Kidney transplant is by far the leading treatment for ESKD in children and adolescents under 18 years of age in France, offering these patients the best possible life expectancy. Given the small number of patients, only a nationwide registry can provide an unbiased view and make it possible to analyze this population that requires super-specialized treatment. The participation of French pediatric nephrologists in the REIN French registry also makes it possible to provide input to the European registry (ESPN/ERA www.espn-reg.org/index.jsp) and the international registry (IPNA https://ipna-registry.org) (consulted on September 15, 2022) and thus supports international studies, which are vital for improving practices.© 2022 Société francophone de néphrologie, dialyse et transplantation. Published by Elsevier Masson SAS. All rights reserved.
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To mark twenty years of the REIN (French Renal Epidemiology and Information Network), a summary report on the contributions of the French national end-stage kidney disease (ESKD) registry was produced. On pediatric patients, a number of key takeaways were identified. Pediatric ESKD has particularities that must be analyzed and taken into account, since the mortality of these patients remains 30 times higher than that of children of the same age. The REIN registry illustrates the specificities of ESKD in the pediatric age-group in France and provides a set of indicators making it possible to describe the outcomes for these patients and decisions made concerning the modalities of renal replacement therapy. Compared to other European countries, the incidence and prevalence of ESKD in France is in the middle range for children under 15 and 20 years old. Kidney transplant is by far the leading treatment for ESKD in children and adolescents under 18 years of age in France, offering these patients the best possible life expectancy. Given the small number of patients, only a nationwide registry can provide an unbiased view and make it possible to analyze this population that requires super-specialized treatment. The participation of French pediatric nephrologists in the REIN French registry also makes it possible to provide input to the European registry (ESPN/ERA www.espn-reg.org/index.jsp) and the international registry (IPNA https://ipna-registry.org) (consulted on September 15, 2022) and thus supports international studies, which are vital for improving practices.© 2022 Société francophone de néphrologie, dialyse et transplantation. Published by Elsevier Masson SAS. All rights reserved.

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