TY  - BOOK
AU  - Sommer,Rachel
AU  -  da Silva,Neuza
AU  -  Langenbruch,Anna
AU  -  Maurer,Marcus
AU  -  Staubach-Renz,Petra
AU  -  Augustin,Matthias
TI  - Characteristics and determinants of patient burden and needs in the treatment of chronic spontaneous urticaria
PY  - 2020///.
							
N1  - 20
N2  - Background: Treatment of chronic spontaneous urticaria (CSU) is founded on evidence-based guidelines. However, specific patient needs and benefits of therapy have not been outlined at the guideline level. Objectives: The aim of this study was to characterise the specific needs and treatment goals in chronic spontaneous urticaria from the patient's perspective. Materials and Methods: This cross-sectional study was conducted in four German outpatient dermatology clinics. Patient needs and potential therapy goals were determined with the validated Patient Needs Questionnaire (PNQ) using a specific version for chronic urticaria. Further instruments to characterise the link between patient needs and disease burden were disease-specific (CU-Q2oL), skin-generic (DLQI) and health-generic (EQ VAS) scales. Results: Data from 103 patients were analysed (age: 43.92 ± 14.96 years; 71.4% female). Among the most important therapeutic goals were the absence of visible skin lesions (92.3% important/very important), to be free of itching (91.5%) and the desire to be healed of all skin defects (89.5%). All 26 items were found to be quite important/very important by at least 30% of the respondents. Specific profiles of patient needs were found to be related to sex and disease duration. Conclusion: Innovative drugs and patient-centred individualised treatment may increase overall benefits. Regardless of the treatment chosen, shared decision making in the management of the disease should be a goal
UR  - https://shs.cairn.info/revue-european-journal-of-dermatology-2020-3-page-259?lang=fr&redirect-ssocas=7080
ER  -