000 01775cam a2200277 4500500
005 20250121060108.0
041 _afre
042 _adc
100 1 0 _aTerral, Philippe
_eauthor
245 0 0 _aElders as “experts”: Difficulties experienced by health care patients in having their experiential knowledge recognized
260 _c2022.
500 _a45
520 _aFocusing on a workshop that brought together caregivers and former patients to co-construct a tpe (Therapeutic Patient Education) program on the use of oral anti-cancer drugs (oac) associated with an interventional social science research project, this article studies how the expertise of former patients was mobilized. We show that not all former patient profiles are involved in this participatory device due to device selection processes or self-selection of the patients themselves. We then highlight the gap between these collaborative objectives and their concrete implementation, which is often more laborious. The analysis insists on the importance of some shared socio-cognitive skills required to persevere in the objective of co-construction. Ultimately, by considering the expertise of former patients, this investigation questions the links between epistemic inequalities and social inequalities, or, to put it differently, between knowledge and democracy.
690 _aexperience
690 _aexpertise
690 _aoncology
690 _apatients
690 _aparticipation
690 _aexperience
690 _aexpertise
690 _aoncology
690 _apatients
690 _aparticipation
786 0 _nEmpan | o 125 | 1 | 2022-03-10 | p. 36-43 | 1152-3336
856 4 1 _uhttps://shs.cairn.info/journal-empan-2022-1-page-36?lang=en&redirect-ssocas=7080
999 _c474280
_d474280