000 01613cam a2200229 4500500
005 20250121141409.0
041 _afre
042 _adc
100 1 0 _aPierru, Frédéric
_eauthor
245 0 0 _aThe resistible assertion of “patient-users” in health system governance
260 _c2022.
500 _a64
520 _aHealth democracy and the consecration of the rights of patient-users are often presented by the actors in this history as an irresistible conquest leading to the progressive autonomy of the latter from the powers that structure the field of health. However, on closer inspection, this story is much more complex and winding. Moreover, the enshrinement of individual and collective rights is not always enough to guarantee their effectiveness in an institutional landscape that has undergone major transformations since the 2002 law. Finally, while there have been undeniable advances, the COVID-19 pandemic has highlighted how fragile these gains are. If the AIDS epidemic was a key moment in the “birth” of health democracy, the current pandemic has played the opposite role, by giving precedence to a health police force that has little regard for democracy, whether representative or health-related.
690 _ahealth democracy
690 _ausers’ rights
690 _aCISS
690 _aCOVID-19
690 _a“AIDS movement”
690 _apatient-user
786 0 _nLes Tribunes de la santé | o 70 | 4 | 2022-03-04 | p. 57-72 | 1765-8888
856 4 1 _uhttps://shs.cairn.info/journal-les-tribunes-de-la-sante-2021-4-page-57?lang=en&redirect-ssocas=7080
999 _c582161
_d582161